Clinical advocacy has many different shapes. In the US, says Dr. Bettina Ryll, patient advocates work as patient’s navigators in the healthcare system. In Europe, they have a more activist/policy influencing role. When a patient’s interest in his disease grows beyond his personal interest, he becomes a patient advocate, says Mr. Ryll, when asked about how she would define patient advocacy. 
This episode presents the role of patients in improving care, the influence of patient advocacy and needs of patients with serious conditions.
 
Summary: https://www.facesofdigitalhealth.com/blog/f065-f068-the-power-of-patients-4-episodes-series
Melanoma Patient Network Europe: http://www.melanomapatientnetworkeu.org/