Patient-reported outcomes (PROs) have become increasingly integral in healthcare for assessing the effectiveness of treatments from the patient’s perspective. It sounds like a reasonable step in improving clinical research and care provision, but gathering data can be more difficult then you may think. It isn’t easy to get to marginalized communities. There are language barriers in collecting data. There are cultural aspects that impact responses. So, how can you design useful electronic solutions for patient-reported outcomes? Hear from Mustafa Ali Syed, Researcher at the Manchester Academic Health Science Centre, The University of Manchester, and Ben James, Co-founder/Chief Design Officer at uMotif – ePRO, an engagement platform designed to power clinical and real-world research. Both are co-authors of a recently published paper titled Exploring the Cross-cultural Acceptability of Digital Tools for Pain Self-reporting.

www.facesofdigitalhealth.com

Newsletter: https://fodh.substack.com/

Show notes:

00:00:00 Why Do PROs Matter?

00:04:00 Evolution of Data Collection

00:06:00 Importance of Diversity in Clinical Trials

00:08:00 Ethnicity, Culture, and Pain Perception

00:12:00 The Role of Technology in PROs

00:14:00 Designing Inclusive Digital Solutions

00:20:00 Challenges in Engaging Targeted Populations

00:22:00 Language and Communication Barriers

00:26:00 The Future of PRO Research